Progress in Pediatric Cardiology
Volume 25, Issue 1 , Pages 31-36 , April 2008

The Pediatric Cardiomyopathy Registry: 1995–2007

  • James D. Wilkinson

      Affiliations

    • Division of Pediatric Clinical Research, Department of Pediatrics, Miller School of Medicine, University of Miami, Miami, FL, United States
    • Corresponding Author InformationCorresponding author. Department of Pediatrics, Division of Pediatric Research, Leonard M. Miller School of Medicine, PO Box 016820 (D-820), Miami, FL 33101, United States. Tel.: +1 305 243 1574; fax: +1 305 243 8475.
    • ,
  • Lynn A. Sleeper

      Affiliations

    • New England Research Institutes (NERI), Watertown, MA, United States
    • ,
  • Jorge A. Alvarez

      Affiliations

    • Division of Pediatric Clinical Research, Department of Pediatrics, Miller School of Medicine, University of Miami, Miami, FL, United States
    • ,
  • Natalya Bublik

      Affiliations

    • Division of Pediatric Clinical Research, Department of Pediatrics, Miller School of Medicine, University of Miami, Miami, FL, United States
    • ,
  • Steven E. Lipshultz

      Affiliations

    • Division of Pediatric Clinical Research, Department of Pediatrics, Miller School of Medicine, University of Miami, Miami, FL, United States
    • ,
  • for the Pediatric Cardiomyopathy Study Group

References 

  1. Grenier MA, Osganian SK, Cox GF, et al. Design and implementation of the North American Pediatric Cardiomyopathy Registry. Am Heart J. 2000;139:S86–S95
  2. Towbin JA, Lowe AM, Colan SD, et al. Incidence, causes, and outcomes of dilated cardiomyopathy in children. Jama. 2006;296:1867–1876
  3. Lipshultz SE, Sleeper LA, Towbin JA, et al. The incidence of pediatric cardiomyopathy in two regions of the United States. N Engl J Med. 2003;348:1647–1655
  4. Arola A, Jokinen E, Ruuskanen O, et al. Epidemiology of idiopathic cardiomyopathies in children and adolescents. A nationwide study in Finland. Am J Epidemiol. 1997;146:385–393
  5. Nugent AW, Daubeney PEF, Chondros P, et al. The epidemiology of childhood cardiomyopathy in Australia. N Engl J Med. 2003;348:1639–1646
  6. Colan SD, Lipshultz SE, Lowe AM, et al. Epidemiology and cause-specific outcome of hypertrophic cardiomyopathy in children: findings from the Pediatric Cardiomyopathy Registry. Circulation. 2007;115:773–781
  7. Cox GF, Sleeper LA, Lowe AM, et al. Factors associated with establishing a causal diagnosis for children with cardiomyopathy. Pediatrics. 2006;118:1519–1531
  8. Kelley RI, Cheatham JP, Clark BJ, et al. X-linked dilated cardiomyopathy with neutropenia, growth retardation, and 3-methylglutaconic aciduria. J Pediatr. 1991;119:738–747
  9. Bione S, D'Adamo P, Maestrini E, Gedeon AK, Bolhuis PA, Toniolo D. A novel X-linked gene, G4.5, is responsible for Barth syndrome. Nat Genet. 1996;12:385–389
  10. Schlame M, Towbin JA, Heerdt PM, Jehle R, DiMauro S, Blanck TJJ. Deficiency of tetralinoleoyl-cardiolipin in Barth syndrome. Ann Neurol. 2002;51:634–637

☆ Supported by the National Heart Lung and Blood Institute (HL53392) and the Children's Cardiomyopathy Foundation.

PII: S1058-9813(07)00166-X

doi: 10.1016/j.ppedcard.2007.11.006

Progress in Pediatric Cardiology
Volume 25, Issue 1 , Pages 31-36 , April 2008

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